WellIT sunday and very quiet in the house as everyone is still sleeping I really like the peace and quiet as it seems like we don't get that much around here anymore.... But I am working on that.... so I can have my peaceful house again. I guess when you have kids moving in and out they forget the rules when they come home but I will reming them.. yesterday I went shopping with Brittany and we finally found her senior prom dress and it beautiful on her when had been looking forever and nothing s
I not sure how to deal with all this but I will as i always do I think II just be glad when tuesday gets here and we have the surgery done at least then it be one thing dealt with though it seems here lately that everyday I have something new to deal with and usually it ok but right now ken seems distance I think that he handling this but it hard for me becasue usually it not like with us and i not even sure how to talk with him aboutn it or even if i should maybe he just needs the space. We sup
Well it Thursday morning and the day after botox it was nice to wake up with no miograine I sure hoping that the botox will work likeitusually does. Because having todeal with the rest of the problemsi beleive i going to have to be able to concrete on getting this big surgery. Biy do i wish that I had let them take my ovaries when i my hysto when i was thirty now nine years later having to deal with the fact this might be cancerous mass on my right ovary is almostto much frome to take. but at le
I having my first moment of quiet since the news from the doctor yesterday part of me wants to be strong and part of me wants to break down it just been so hard the last few months and it seems like everyday there is something i have to deal with. I did go today for my botox injections formy headahesa nd that a postive thing I was not wanting to deal with them and the surgery on tuesday The docttor has said it going to be a rough and painful surgery on me so i am trying to work myself up witha g
I have come to the point that I beleive unless people are living with disease they are clueless they cannot understand that the stress they put on us pushes to the point of no return and of course they have all the answeers. I love my family but to me right now they are pushing so much stress on me that I do not even care to be around them I know that makes me seem terriable. and they always have all the answers for what will make you better. I just had a conversation with my mom and she thinks
well I have conseeded to go to pain management and the thought of that makes me feel like i am giving up but it hurts with every breathe much less with every step I also conseeded to order thew power chair it really making feel like giving up. I guess i am getting angry and i guesss that a partof it but I have lost my fight and that what scares me as long as i had the fight I never though of giving upn and now when i going to sleep i am praying not to wake up and that scares me I am still trying
Hi everyoneHope is goingt well for everyone and everyone had a good valentimes days Of course I speny mine inthe hospital but Kewn has beeen able to worlk local so it been nioice having him around and when have some trouble with myu step daugtewr so it best for her to dealt with her dad. I went to have my cyst/tumpot yesterday and we had to recheck it has tripple in past I sure theyare going to have to remove it I am waiting to have the endo call me and yje gyn so we can sch that that will some
Happy Valentines Day everyone! Steve sent me some beautiful flowers, roses, carnations, chrysanth's, lillies - I love gerba's but he couldn't get them - but they are beautiful.Still got a bit of cold left, seeing my GP later today to talk through everything with him. I saw him yesterday as Harry is still unwell and he asked me if anyone else had Cushings in the family. I mentioned I suspected my Mum may have it but she won't go for testing. It was nice, he asked how my nursing course was going.
Well, been a while since I blogged. Tons has happened. Was diagnosed with reccurance, saw a registrar in the neurosurgery team, saw my endo, had a confirmed surgery date, had a cancelled surgery due to a cold, waiting for a new surgery date. Tumour has grown, cushings no where near as bad as last time - hoping this 2nd op will be my final...!!Started Uni, having great fun, learning so much in such a short time, made great friends already and feeling like this was the right move - had a couple of
Hello. Hello! I have been sleeping in 12-16 hour jags. Amazing. I think it's been about two months since I last did that. Didn't last long either nor will it now so I appreciate it when I get it. It's good news! And I wanted to share with my friends. Thank you for your support. Truly I am grateful. Otay here 'tis:My appointment on the phone was today. I spent a lot of time preparing and worrying, then once we talked I spent more time with his coordinator setting up an appointment. And talking to
I am shocked when I read my other blogs. I have not had anymore TIA symtoms. They never did officialy find out what was happening. There were several theorys but no real diagnosis. I really beleive they were TIA like symtoms due to stress of working and being on way too many meds. I still have the headaches but not like they were before, again I think it was the meds. Dr.L says TIA can happen with cushing's. So who knows. I am still not well, I have no energy to do anything, even on days when I
Well I am sitting here 233 am you can see I having one of the sleepless night that happens to so many of us that suffer with this disease aand i really I drop today as I have had the most stressful two days. I trying to keep my spirts up but that is sometimes not the easies thing to do when you family is falling apart. Ken dicide that for some stange reason to lash out at me say becasue of my illness we can't plan six moths ahead and I asked him why not he says becaus ethe doctors say we may not
I'm feeling so down. My two special friends, Alice and Sue are both are going through some really tough times right now and I feel so helpless. There's nothing I can do to help either one and it makes me feel so bad. I like being a person who can cheer others up and it's just not working right now. Both are people I met online, neither lives close to me, so I can't just drop by and give out hugs, help with housework, shopping, whatever.I hate to call and be disruptive in case of much-needed nap
Well it wesnesday night Jan 18 I have not blog much this week as i have felt so bad and just didn't have the heart to write. I have bounced from one doctor to another all week so i give a brief detasils on the 10th I got a ct on my stomach and they found several things but at least getting some answers first of all they found kidneys stones in my right kindney a basketball size tumor or cyst on my right ovary and vertial hernia. So where to go fromhere is a good question went back to the endo on
Today has not been a very good day it one of the days that I wish Ken did not drive truck for a living... I got a call yesterday telling me they found a basketball size cyst on my right ovary but i went in to the ob gyn this morning it could not be a cyst as the syst are produced by hormones and since i don't make homornes so he order a pelvic ultra sound and told me he thinks it a tumor that is leaking in my and possably bleeding which would cause the severe pain Right now I am home alone and
Well, yesterday I had the big appointment at the Endo?s [Endocrinologist- supposed to be the experts on Cushing?s and treat a lot of diabetics, too] and whoa was it enlightening. The whole time I?m thinking he looks like someone, only a bit younger, and I got this face in my mind but can?t place the name; then I think of it?he looks very much like Donald Rumsfeld! HA HA HA. He does. Really. The guy that headed up our National Security in the USA. Ha ha ha. So, my doctor, Dr. F, has been waiting
Its 12:48 right now - no news as yet...just been to the Dr's as I was supposed to have my Hep B injection today but the nurse got her days mixed up and it is tomorrow not today - I feel absolutely exhausted having walked up there and back. I just feel rough, heads all over the place, all my limbs are aching and my eyes keeping goign in and out of focus - what the hell is going on...!!Had a call from the Learning Support officer at Uni today to find out if I need any special assistance. I didn't
Right now, I feel absolutely exhausted. I head just aches with all the pressureof thinking too much, my cheeks are burning and I am getting black streaks before my eyes - probably the stress of it all. I wish I didn't have to wait another day to find out for sure if it is a reccurance. Just ben reading up on alot of others stories and articles. For months I guess I have been trying to ignore all of the things happening, putting it down to th eother hormones acting up, the way recovery happens...
Well it Monday morning I cqan't wait to tomorrow to meet with the neuro surgeron kinda scare in someway but mostly just ready to get it over with.The swelling is so bad today as it was yesterday can barely stand to be on my feet. I got this am tried to staight up the house a bit but I had a black out so I guess i better take it easy as i don't want anymore broken bones right now. Ken just called from beau bridges and will be homein a hour or so. So he get tthe girls to clean up there messes this
Well at last I get a few minutes to sit here and write tried to earlier but that was not successful because everyime I sit down someone is needing something. Jessie and her boyfriend have hung out at our house this weekend as he is having trouble at home which is ok most times it just seems like we always have someone b/f here I can't remember we sat down to dinner with just the girls. Ken says he has a good feeling about my surgery but I getting a liittle nervous but I sure that is fairly norma
I've managed to perk myself up a bit today. Mum and I made up last night and Steve and I have been having a laugh today. Mum took Harry shopping so it gave us some quality time together - sacred these days! Its been a relaxing day so far and each of us has been doing our own things as well as having a laugh together. Want more days like today. I don't feel so sad today, but to be honest I have been up and down for a while even though I have not mentioned much about it on the boards. I seem to ha
I am getting fed up with all this now...still feeling depressed...trying to cheer myself up with reading posts and trying to reply but still feeling very down. I think its just the not knowing with things, lack of money driving me mad, lack of progression in anything right now, and I just seem to be touchy to everyones words, ultra-sensitive...I really hate being like this...I vowed at the start of the year to start changing my ways but I have fallen back into bad habits again. The only problem
Oh god, I ache all over, my body is not my own today...I am seriously paying for moving all that furniture 2 days ago. Stupid, stupid woman that I am....won't ask for help, need to do it all myself and look at me (well you can't) I am a bloody wreck. My blood sugars are slightly elevated but within normal range, this damn lumps on the side of my neck are enlarged again, each muscle is painful and I keep checking for my hump, it feels like I still have a small one, but I can't be sure...Steve say
